Choose Joy

Seeking Jesus in this crazy journey

A message to all the Pray-ers and Do-ers

If you’ve read many cancer blogs, they’ll inevitably post the blog about “what’s helpful and what’s not” / “what not to say to someone with cancer” / “how to really help”.

I didn’t want to be that person.  Because I KNOW I’m going to put something on here and you’re going to be like “Ahh, I’ve done that/ said that and Alissa must’ve hated it.”  Lots of people have said lots of things to me.  Some of them have been more hilarious than helpful, but I know the intentions behind them were always good.  I know that you guys are navigating the sticky situation of when and how to bring up cancer topics.  I know you want me to get better.  I know that there’s always a lingering question of who knows what and did I say too much.

It’s okay.

This is our way moving forward, and we’d love to invite you into it.

We’ve prayed for healing for 6 years.  We still trust that God could choose a miracle and we’d love that.  We also recognize that incredible role of his sustaining healing and pray for continued sustenance for as long as he provides it.

A long time ago, I had a picture of God holding the sun in the sky for us to get the work done that he’d given us to do.  More recently, I had the same picture, but the sun was setting.  As we’ve had these really hard appointments and conversations with our medical team and our people, we’ve come to terms with this.  The logical, medical progression is that I will die from this.  We are so sad and are grieving/ will continue to grieve this.  You can be sad too.  But it’s also okay to accept it.

We’re very happy for you to pray as God leads you in your own prayer times, but with us could you pray for sustenance, for energy, for appetite, and for an ease in pain.  (Praying for healing is such a God-honouring prayer, but it is also hard for us.)  Would you pray for us to have great time together as a family for as long as possible, to make meaningful memories with the people closest to us, and to finish well.

When you’re with us, it’s fine to have those deep talks and to ask us how we’re doing.  Obviously we need that.  I do a lot of my processing externally, so I like to talk it out.  But I also like to talk about you!  I think sometimes people feel like their struggles aren’t as struggle-y, so they shouldn’t burden us with them.  We want to share your life like you share our’s.  Also, I’m a planner, so bear with me while I plan out the seemingly morbid details of the next coming months.  To me, it’s helpful.  If it’s not helpful to you, it’s ok for you to peace out of those conversations.

And sometimes let’s just pretend there is no cancer.  Let’s just have fun and make memories together.  Ask us “what’s up?” and let’s talk about our weekends.  Let’s go out for coffee and talk about our bratty kids and how much we hate PD days and how I still think you should become a foster parent and reminisce about how we looked in grade 8.   [Interesting Fact: Did you know, you can still have fun and laugh when you’re dying?  True story.]

We’re having these hard talks with our kids (so be sensitive around them), but we’re also trying to make these months good and not filled with fear.  Maybe I’ll write about that sometime, but please talk with your kids (the kids who I love and who have loved me throughout this journey) and let them know they can talk to me if they want.  We want this process to glorify God and draw people (kids and adults) closer to him, so let’s walk together in what it looks like when God’s answer to our prayers is ‘no’.  (PS. I’m okay with your kids’ awkwardness.  It’s not going to wreck me.)

 

Part of accepting where we’re at in our journey is recognizing that we have learned a lot about different health strategies.  We feel pretty good with where we’ve landed.  We’ve gone through so many appointments, so many pills/ chemos/ radiations/ surgeries, so many attempts to fight this cancer.  We know there’s always another thing we could try, but honestly I’m pretty tapped out from the fight.  We want to remember my last year as fondly as we can, packed full of skipping school and eating ice cream and going on fun road trips.  You can love us by joining us in that.

Probably the most practical thing that you can do to help us out is bring a meal.  I’m feeling pretty sick, pretty consistently – but I still have a family who thinks eating is a good idea.  If you just text me a few days in advance and offer a meal for a certain day, I’ll let you know if it’s helpful.  Some days are regularly covered (Thursdays) (THANK YOU!!) or if my dad is here, he does his whole master chef thing.  But if I know food is coming a few times a week, it’s a weight off.  (Alternatively, I won’t say no to a freezer meal if that’s easier.)

If you want to help us, then do it.  We’ll love it!  Think of something that makes sense to do and offer that up to us.  Asking us to let you know if we ever need anything will probably not have a huge response rate because accepting help is hard, but asking for it is even harder.

We’re grateful we have people who care enough about us to read another silly blog and try to meet us where we’re at.  We love y’all so much.  I hate that you need to navigate this with us and hope you find ways to “come to terms” with it all too, however that looks.

With much love,

Alissa & Carey

 

Leave a comment »

Dying with Dignity is Living with Dignity

It’s everywhere right now. 29-year-old with terminal cancer chooses to “die on her own terms”. I watched the video and read the articles. And I read Kara Tippetts’ response. It all hits close to home. I’m 29, with terminal cancer, and the idea of suffering isn’t one I’m stoked about.

I believe that life is sacred. I have a perfectly placed hope in life after death. And I believe that the greatest beauty can be birthed from the greatest suffering.

But more than just saying I wouldn’t do it, I disagree with her rationale. I don’t think that it is selfless. I don’t think it is brave. And most of all, I don’t think choosing to take your own life brings you dignity.

I want my life to be lived in such a way that in my last moments, God will still be glorified. It won’t matter if I am ugly crying, or can’t remember where I am, or pee the bed… Those things will not strip me of my dignity. I’m sad that my husband and family and friends will most likely have to watch me suffer. It’s terrible. But I hope the pain of that experience draws them closer to Jesus.

Instead of choosing when I die, I want to choose to die well. Whenever that is; however slowly or painfully or tragically that happens. Until my last breath, I want to be seeking to find joy and hope and peace in Jesus. I want to die with dignity because I lived with dignity.

Leave a comment »